Counterpulse, Arts Fundraising and Down’s Syndrome

capacitor

Capacitor dance photo via Facebook

Over the weekend I went to Counterpulse, a local arts organization that specializes in producing cutting-edge works of performance art. They have been in the same spot in SoMA for a decade but are moving to a new building in Tenderloin later this year. I had been there before and enjoyed the space and the mission of the place but hadn’t attended anything there in a long time. I didn’t realize that what I was attending was a fundraising event, but it ended up giving me a great perspective on the place.

mayday

I heard about the May Day event because of an email from Capacitor, one of the five groups performing on the night that I went. They’re an aerial-contortionist-dance group that I always find amazing and I look forward to seeing their work. They didn’t disappoint of course, sharing and excerpt from a longer work that will be at Fort Mason next year that I’m already looking forward to.

Capacitor has been working with Counterpulse for the past year. The other performances were a mixture of similar work helped along by Counterpulse and performances by other partner / sister organizations in the Bay Area like ODC theater. Both types of performance were interesting. There was a wearable technology performance where movement altered voice sounds in a captivating way. There were two pieces that had a humorous edge. And there was a solo dance performance using a oversized chair as an impressive prop. I loved the mixture of performances, the unique inspiration of each, the abbreviated look at the dance community in the Bay Area.

directors counterpulse

Counterpulse executive director Tomás Riley with artistic director Julie Phelps

What was interesting was that it was also a fundraising event. Before the show and during intermission was a silent auction where people could bid on items including wine, bodywork, art, bike tours, overnight getaways, book collections and more. Between the two final acts there was an “auctioning of the bills”. This was fascinating to watch. The directors of Counterpulse got on stage and shared a breakdown of the different costs of operating their new facility, asking people to take on a portion of the costs. They said it was a way for donors to let people really know where their money was going. And of course it helped to make their costs really transparent.

It was fascinating to watch what people would contribute for or not, something that seemed to be based on the item up for donation rather than the dollar amount. Someone who didn’t bid on anything else shot his hand up immediately to donate enough to cover one week of free yoga for community members. Another gave to cover the cost of one month of full health insurance coverage for one of the staff members. A few donated to help provide stipend funding for arts fellows. Three more each gave a month of rent costs to keep the doors open. Another wanted to give tangibly and offered her money to the cost of office supplies and toilet paper.

Sometimes it was uncomfortable, sitting there in the audience, waiting to see if anyone would give for something specific. There was a sense of pressure to give, even though the presentation of the process was congenial and friendly, and I was curious if some people were giving out of response to that pressure. It was also interesting, as an outsider who isn’t really familiar with this community, to see how much of the giving came from a combination of staff members, board members and longtime supporters that the staff knew by name. It made me think of how we are all so passionate about our own little communities, the niches we’ve found ourselves in that we’re willing to really give for. It made me think of Amanda Palmer’s The Art of Asking and how it’s so true that people really do want to give to others in so many different ways.

art of asking

One of the things that they were requesting donations for was the cost of maintaining the elevator in their new space. They mentioned that they were not required to include an elevator but wanted to do so as part of their ongoing commitment to full accessibility – not only so that people with disabilities can attend shows but so that dancers with varying accessibility issues can be welcomed to participate in the shows. This impressed me. I see a lot of live performances of all types and it made me think about how few have had visible disabilities of any kind.

writing with grace book

Right now I’m reading Writing with Grace: A Journey Beyond Down Syndrome, a book by writer Judy McFarlane who works with a young woman named Grace who has Down’s Syndrome and is writing her own book. Judy is starkly honest about her own preconceived notions as she first met Grace and how she had to confront her own biases. She delves deep into the history of Down’s Syndrome research and litigation, both in Canada where she is based and also around the world. One of the things she highlights is the way that Down’s Syndrome fetuses are frequently aborted. I have no opinion either way on this, other than to say that I think abortion is a choice that all mothers should have though it shouldn’t be taken lightly and always comes with pain even when it’s the right choice. But the idea of it struck me because I have always kind of accepted that this is a totally reasonable choice to have and McFarlane caused me to consider that perhaps the legitimizing of aborting an entire category of humans isn’t something that should be commonly accepted.

What it really has me thinking about, I suppose, is the many different types of people there are in this world compared to the small percentage of which we consider “normal”. People on the autism spectrum, people with developmental disabilities and physical disabilities, people with major learning disabilities, people with mental health issues … there remains so much stigma around all of these things, stigma I admit I work with constantly inside my own self to varying degrees. And how each of these is considered a disability that diverges from the “norm”. But with the percentage of people affected by any one of these things, can we really say that the “norm” is norm at all?

I’ve learned a lot about the thinking process of people with autism as well as the learning process of people with dyslexia. Now in reading about Grace’s journey, I’m seeing yet another side of the same coin. And what it forces me to look at is my own value system in regards to “intelligence” and “knowledge” and “being smart”. I’ve always been smart by the standards of society. I’ve always gotten great grades in school and been able to carry on intellectual conversations on a wide range of topics and enjoy being well-read. And yet, it’s only way of learning and interacting with the world, so what I cling to as “smart” for me excludes entire categories of people who learn and express in other ways.

I realize this isn’t a new concept by any stretch, that this is something that people with different learning styles have been telling us for a long time. And yet it’s somehow impacting me in a different way right now. It’s subtle. I’m not sure what it means or will turn into or if it’s just reorganizing my thinking a little bit, which will likely reorganize my perception of and experience in the world. It’s all in process. And where I am at today.

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